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| It is an open secret that most psychiatrists do not use the DSM. |
Read
the news and you may be forgiven for thinking there is some violent fervor
about the release of DSM-5. Its arrival is apparently “long awaited” and “hotly
anticipated.” Petitions denounce it. Organizations note their “concern”. Lobby
groups have called it unsafe, unfit for purpose. Campaigns for the abolition of
psychiatric diagnoses appear. Survivor groups issue premature pronouncements of
psychiatry’s death. I’ve been wondering: who exactly has been awaiting its
arrival? It’s not researchers: The National Institute of Mental Health has made
it clear that the psychiatric research agenda has moved on from categorical
diagnoses. It’s not clinicians: most psychiatrists do not even use the DSM to
make diagnoses. It’s not insurance companies: even in the US, most payers do
not accept the DSM for billing purposes. It’s certainly not patients: a new
system of classification will not improve patient care or revolutionize
treatment. So then, what’s all the fuss about? Does the release of DSM-5 even
matter? The answer is yes, but not as a psychiatric document. What makes the
DSM so pernicious is that it is a cultural document whose influence transcends
not only psychiatric practice but also the Western civilization from which it
originates. Each revision of the DSM rescripts and reimagines how we make sense
of our experiences, reinterprets what thoughts, feelings and behaviors are
socially sanctioned, and ultimately what it means to be human.
Psychiatrists Don’t Use the DSM
One
of the fiercest criticisms of DSM-5 is that it will expand the borders of
mental disorder and thus psychiatrists will wrongly diagnose and treat people
as mentally ill. Allen Frances, former chair of the DSM-IV task force, most
ardently voices this criticism. He comes across as a silly old man nursing a
narcissistic injury (he was excluded from DSM-5), throwing his toys out of his
pram. He makes the assumption that psychiatrists use the DSM to make diagnoses.
It is an open secret most psychiatrists in fact do not! If most psychiatrists
used the DSM constructs we would not see an epidemic of bipolar diagnoses in
children as young as two. In fact, most of the patients who come to me with the
label of bipolar disorder, do not meet the criteria for the DSM-IV bipolar
disorder construct. Schizoaffective disorder, which is supposedly a rare diagnosis,
is possibly the most common diagnosis I see in the charts of inpatients which
is deeply suspicious. More systematic studies show diagnoses patients garner
have little to do with the DSM. For example, one study in the Veteran’s
Administration system suggest 25% of schizophrenia diagnoses did not meet DSM
criteria, and psychiatrists often made up diagnoses so Veterans could get
benefits. In the private systems, fraudulent diagnoses are given as diagnosis
determines remuneration.
Most
psychiatric diagnoses are not made by psychiatrists but in primary care. Most
primary care physicians do not know the diagnostic criteria for most of the
common mental disorders as described in the DSM, but that does not stop these
labels being used. Even for some common mental disorders most psychiatrists do
not know the diagnostic criteria off by heart, and even if they do, take no
heed. Take posttraumatic stress disorder as an example. This is a common mental
health diagnosis. The diagnostic criteria for the construct are many and
complex. I would hedge that over 90% of psychiatrists do not know the
diagnostic criteria verbatim. Even if they did, one criterion is than an
individual responded to a traumatic event with “fear, helplessness, or horror.”
I do not know of any psychiatrists who ask their patients whether they
responded in one of these three legitimated ways of responded to severe
adversity, and if they did, their patients would probably be puzzled. Having no
immediate reaction, or feeling anger or shame instead of “fear, helplessness or
horror” to rape will not preclude a psychiatrist making a PTSD diagnosis, but
if you stayed faithful to the DSM-IV, PTSD cannot be diagnosed. For depression,
the bereavement exclusion is going and there has been concern people will now
be diagnosed with depression following bereavement. It is already happening and
has been happening for years.
That
is not to say that diagnostic assessments are never useful, but this goes
beyond the DSM. Diagnosis is important when it comes to identifying whether the
morbid mental state is secondary to a medical condition. For example, I have
treated patients who present with ‘depressive psychosis’ but this is due to
myxedema coma, or those who are behaving bizarrely but have a metabolic
encephalopathy. It is also important to identify whether the individual has
fried their brains with drugs such as methamphetamine, ‘bathsalts’, or ‘spice’
which can lead to florid perceptual distortions and erratic behavior.
DSM diagnoses no longer guide
treatment
Perhaps
diagnosis informed treatment once upon a time, but this does not seem to be the
case today. This is at least partly true. Individuals have experiences of
mental life that cause distress and lead them to behave in ways others feel are
bizarre or un-understandable. As a result they may see a psychiatrist. The
psychiatrist can engage in the semiotic act of making a diagnosis. In order to
do that, he engages in a precursor semiotic act, which involves recoding
individual experience and observable mental phenomena or behaviors into
‘symptoms’ and ‘signs’ respectively. If he stops there, he can, and often does ‘treat’
the patient. If those ‘symptoms’ and ‘signs’ are regarded as psychosis, he will
end up on a neuroleptic. If the patient is seen as ‘depressed’, he may end up
on a serotonin reuptake inhibitor. If he appears ‘anxious’, perhaps a
benzodiazepine will be prescribed. If ‘mood swings’ are observed, lithium or an
anticonvulsant will be the order of the day. Many patients have experiences
that are recoded into a bewildering combination of depression, elation,
irritability, psychosis, anxiety, and may end up on an ‘antidepressant’,
anticonvulsant, neuroleptic, and benzodiazepine,
and if there is no response, this experience will be interpreted as
‘treatment-resistance’ and another medication will be added! I would like to
say that this is a caricature of American Psychiatry, but this appears to be
the rule rather than the exception. This is not how I practice, and am
fortunate to have thoughtful trainers, but outside the academic ivory tower and
in the community rampant polypharmacy is the rule. This happens in spite of
diagnostic constructs in the DSM, not because of them. Sometimes response to
cocktails is even used to support a diagnosis in a backward logic. In this way
the DSM is largely irrelevant to the practice of psychiatry. Systems of
psychiatric classification are relevant in the consultation room more from
their influences on cultural consciousness and experience of the self, than
from use in guiding diagnosis and treatment.
Redefining Personhood
Throughout
history there have always been individuals who have been regarded as mad, or as
Philippe Pinel called it, suffering from ‘mental alienation.’ For Pinel, to be
mad meant one’s “character, as an individual of the species is always
perverted; sometimes annihilated”. Without reason, man is no different “from
the beasts that perish”. It is not madness that causes one to relinquish
personhood, but to be identified as such. Psychiatrists, as the moral arbiters
of mental life are thus also the high priests of personhood. Psychiatric
diagnoses today extend far beyond ‘mental alienation’ and include a wide array
of behaviors and experiences regarded as deviant. The removal of homosexuality
from the psychiatric cannon is the best example of how personhood was restored
to individuals previously regarded as pathological and deranged. For DSM-5,
‘gender identity disorder’ is being replaced with ‘gender dysphoria’. This is
similar to homosexuality being replaced with ego-dystonic homosexuality before
being expunged altogether. So whilst transgender individuals will no longer be
regarded as mentally ill, it is a mental illness if you feel shit about it. A
step to reclaiming personhood perhaps, but the transperson’s response to an
intolerant society is still seen as pathological.
Far
away from the locked psychiatric unit and the consultation room, the DSM exists
in classrooms, libraries, the internet, the popular imagination. Each diagnosis
at once hijacks personhood and redefines it. With the disappearance of
Asperger’s syndrome, a cohort of socially awkward computer geeks have been
disenfranchised and forced to rejoin ‘neurotypicals’ or be redefined autistic.
The DSM provides the script of how we should respond to trauma; the narrative
of resilience replaced with vulnerability. It is a veritable ‘how-to’ for those
wanting to be anorexic or bulimic and join ‘pro-ana’ communities. It
conveniently rewrites the ways we can be seen as ill, seek professional help,
gain compensation, or even moral exculpation for our behavior. From Portland to
Port Moresby, the DSM unites us with a global template for being mentally ill.
In doing so, the DSM not only seeks to describe the landscape of
psychopathology, it actively shapes it. Whilst removing the bereavement
exclusion for diagnosing major depression may not change the psychiatrist’s
attitude, it does refashion the cultural expectations of what constitutes
acceptable misery. What is pernicious about the DSM is not how it shapes
psychiatric practice directly – it doesn’t. Instead, it at once erodes personhood
from those seen as ‘mad’, and for everyone else creates a cultural expectation
that we are all sick and in need of treatment.





